Hi My Very Special Friends,
Hope you are able to join us Saturday, October 8th,
8:30-10:00 - STAMP OUT PARKINSON'S WALK at the
Philadelphia Zoo ( 3400 West Gerard Avenue, Philly )
organized by Wendy Lewis and The Parkinson Council --
click below for further information:
https://theparkinsoncouncil.org/events2/category/special-event/
Join us at this in person meeting...
** October 12th, 12 PM, Parkinson's Support Group at the
Cherry Hill JCC, 1301 Springdale Rd, Cherry Hill. Speaker will
be Michael Newell, MSN, RN, Healthcare Coordinator and Advocate.
Michael's service to his clients is called LIFESPAN Care management.
His company provides Healthcare Coordination and Advocacy for
families with a loved one at home or in hospitals, nursing homes, and
assisted living facilities. As a nurse, he advocates for clients in facilities
to encourage best practices and does insurance appeals when needed.
He works with families to optimize his client’s health-related quality of
life and optimize the client’s function. His talk will provide valuable
information to keep in mind should your loved one be in a facility.
Lunch will be provided.
Kindly RSVP by October 6 for planning purposes to
smhirsch35@comcast.net or 609-304-5761.
************ ******************************
Assistance is Needed!!!
October 4th from 2:30-5:30
HELP TEACH PT STUDENTS ABOUT PARKINSON'S DISEASE.
at the PD Department at Saint Joseph's University ( University City Campus)
4500 Woodland Avenue. Parking is available. Reimbursement $25.00.
For further information contact:
Course Director Dr. Anne Galgon at 215-596-7044, Agalon@sju.edu.
**************************************************
GOOD NEWS:
Congressman Kim voted to pass the Inflation Reduction Act of 2022 and
President Joe Biden signed it into law on August 16, 2022.
The new law will deliver huge savings and peace of mind for seniors in our
community by finally allowing Medicare to negotiate for lower drug prices after
decades of opposition from Big Pharma, saving seniors thousands of dollars
according to AARP. The out-of-pocket cost of insulin is now capped at $35 per
month for seniors on Medicare and thanks to Congressman Kim. This is scheduled
to begin in 2023.
With the Capping Drug Costs for Seniors Act, seniors on Medicare won’t pay
more than around $166 per month ($2,000 per year) on prescription drugs.
( Scheduled to begin in 2025.)
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Wishing everyone a good week ahead. Please stay safe! Stay well!
myra
Feel free to be in touch if you have any additions, comments, suggestions,
questions or, if you wish to be removed from this list, contact me at
smhirsch35@comcast.net or 609-304-5761
FOR YOUR INFORMATION.....details on the mailing...
Check through the mailing to see what you are most interested in...
Note many of the organizations send out recordings if you sign up for
the events and are unable to see it when it is first shown. Any questions,
let me know.
Note: The format of this note is:
1. A welcome letter
2. New general information - "check it out"
3. The scheduled zoom programs,
4. The scheduled support groups available
5. Recorded meetings and valuable info available to read at your leisure
and materials that have previously been mentioned
6. Info on research that you can take part in...please consider it!!!!
Check out what you want... when you wish... certainly need not do it in one sitting. NOTE: NEW INFORMATION IS DESIGNATED WITH TWO ASTERISKS **
Reminder... if the print is small on your cell phone,
use your thumb and index finger to enlarge it..
Quick note.. If you forward this update to others, please tell them not to
unsubscribe if they prefer not to receive it... by doing that they unsubscribe
you . Have them just delete it from their computer.
Should you be unsubscribed, go back to an older copy that you have and
subscribe again at the end of your note at update subscription preferences
or contact me.
KATZ JCC PARKINSON'S CONNECTION PROGRAM !!!!
Megan Matis, is the director of the Parkinson's Connection. You may
check with her at mmatis@jfedsnj.org for further information
on Rock Steady Boxing, Pedaling for Parkinson's, Yoga, Pilates, Movement and
Motivation and private training. Click here for the schedule for the week.
NOTE: Penn's Parkinson's Disease and Movement Center has many excellent
programs via zoom. Should you have difficulty with the links contact:
Suzanne Reichwein at sreichwein@pennmedicine.upenn.edu or 215-829-7273.
You may also request a copy of their events by contacting her. Check out new DANCE FOR PD schedule from David Leventhal at:
https://madmimi.com/p/1064d21 or
https://danceforparkinsons.org/resources/dance-at-home
CHECK IT OUT
**Check out the Parkinson Council Educational Event: held last week
- Research to Empower with Dr. Alice Chen-Plotkin and Maggie Kuhl
with Dr. Lorraine Iacovitti.
if you missed the workshop click the video here ( Vimeo).
Also, if you are interested in signing up for the "smell taste," click here.
**Check out the latest in aging advances, research,
and events from National Institute on Aging:
- Exposure to green space may boost cognitive health — A recent NIA-funded study found
- that living near green space is associated with higher cognitive function in middle-aged women.
- Leisure activities may improve longevity for older adults — Older adults may improve longevity
- through various types of leisure activities, according to a new study by NIH researchers.
- Brain stimulation can affect memory in older adults — NIH-funded researchers found that
- noninvasive brain stimulation may improve memory in older adults.
- Combined decline in gait and cognition may better predict dementia risk than either factor alone —
- A decline in walking speed coupled with a decline in cognitive function may predict greater
- dementia risk, according to an NIA-funded study of data from nearly 17,000 older adults.
- Genetic risk factors that underlie depression may also drive Alzheimer’s disease — The genetic
- risk factors that underlie depression may also drive some cases of Alzheimer’s disease,
- according to a recent NIA-funded study.
- Genetic variant linked to Parkinson’s found in immune cells — NIA researchers discovered
- that individuals with a certain DNA variant have an increased risk of developing
- Parkinson’s disease.
- Scientists map genome regions that regulate speed of brain aging — NIA-funded
- researchers identified areas of the genome responsible for accelerating or
- slowing down brain aging.
- NIH-developed multidimensional MRI may detect “invisible” brain injuries, studies suggest —
- NIH researchers have developed a magnetic resonance imaging method that may
- spot previously undetectable brain injuries.
- NIA welcomes Dr. Amy S. Kelley as deputy director — NIA welcomes Dr. Amy S. Kelley
- as the new deputy director of the institute.
- Participant FIRST Work Group releases recommendations to improve study participants’
- experience when clinical trials end early — Multidisciplinary group recommends 17
- strategies divided across the pre-trial, mid-trial, and post-trial phases to better
- support participants when a study ends early.
- The cancer-Alzheimer’s disease nexus workshop: Exploring relationships, mechanisms,
- and therapeutic implications — Join NIA Oct. 18-19 for a two-day virtual workshop
- on Alzheimer’s and cancer.
Read more of the latest NIA research news in the NIA newsroom.
*********************************************
**Valuable information from the Alzheimer's Foundation
“Managing Money: A Caregiver’s Guide to Finances,” which can be viewed
on-demand. Topics include the benefits of planning early; starting a positive
discussion about finances; avoiding financial abuse and fraud; organizing
finances; and creating a backup plan.
Click on the title.to view.
**Davis Phinney Foundation provides a copy of LIVING WITH PARKINSON'S from last weeks
meet up. Click below to watch the recording: WATCH THE RECORDING For previous meetings click here: access previous sessions in the Living with Parkinson's Meetup Series.
*********************************************
** Parkinson's Foundation shares Three top techniques to help with freezing... Click below
Read the Full Article
*********************************************
**Science News from Parkinson's Foundation
Our Science News articles are currently our most popular articles! Catch up now with
PD & Pollution: Something in the Air and Aerobic Exercise Positively Alters
Parkinson’s Brain.
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Check out the recording of Parkinson's Foundation's webinar.. Use it or Lose it:
The Impact of Physical Activity.
Click Here to View Recording
Take our Evaluation Survey here.
Download the slides here
*********************************************
Care Partners this may be of interest...7 Best Exercises for Seniors and
a few to avoid...from Senior Life Style.com
https://www.seniorlifestyle.com/resources/blog/7-best-exercises-for-seniors-and-a-few-to-avoid/
*********************************************
FYI... Upcoming PD Avengers meetings...an opportunity to talk via
zoom with folks all over the world who are living with PD.
Monday, October 17- 7 pm
Tuesday, November 22 - 2 PM
Monday, December 12 - 7 pm
ZOOM LINK - Click to get to the meeting or right click, copy link address
and paste the URL in the web address bar.
*****************************************
Inova Caregivers Series- Dealing with behavior brought on my hallucinations
and delusions...
Check this talk out at: https://vimeo.com/752293029/fcf5c31ecd
*********************************************
View the Youtube : The Long Road to Hope: Ending Parkinson's Disease
Follow the stories of 12 incredible individuals with Parkinson's and their
Journeys to End this Debilitating Disease. Film developed at U. of Rochester.
Click here to see it:https://m.youtube.com/watch?v=A6tbHSPTEUM
********************************************* Curious About Current Research on Parkinson's ... check out this new info from APDA...
https://www.apdaparkinson.org/article/research-on-medications-for-cogn
> itive-decline-in-parkinsons/
> https://www.apdaparkinson.org/article/new-parkinsons-treatments-and-me
> dication-in-clinical-trials/
***********************
Click below for the upcoming webinar meetings including exercise
etc from APDA
https://www.apdaparkinson.org/upcoming-events/?eType=EmailBlast
Content&eId=c1f995f7-6163-4515-8e63-66d4521af0f4
********************** Just sharing these webinars again in case you were unable to
check them out previously. These are provided by Dr. Maria Ospino
from Arizona and they stood out for me..
I ENCOURAGE YOU TO CHECK THEM OUT!
Everything You Need to Learn for PD You Learned in Kindergarten
https://www.pmdalliance.org/portfolio/everything-you-need-to-learn-for-pd-you-learned-in-kindergarten/
Why Do I Have Off Periods and How to Treat Them
https://www.pmdalliance.org/portfolio/why-do-i-have-off-periods-and-how-to-treat-them/
ZOOM PROGRAMS
Monday, October 3, 2 PM Parkinson's Connection presents Raise Your Voice
Group Speech Therapy Class with Judith Koza
Join Zoom Meetng
https://us06web.zoom.us/j/88198775830
Meeting ID: 881 9877 5830 Passcode: katzjcc
Monday, October 3rd, 3 PM, PMD Alliance presents APP Livestream
with Sherrie Gould, NP-C. : Duopa Case Studies,
For further information and to register click below:
https://events.blackthorn.io/en/2EmH006/g/75Jaz0xVBn/app-livestream-duopa-case-
studies-5a222E3ryBc/overview
Monday, October 3rd, PMD Alliance presents Dr. Indu Subramanian
and Shafaq Hussain-Ali speaking on Who Get's PD?
Removing Stereotypes: A Fireside Chat.
Click below for further information and to register.
https://events.blackthorn.io/en/2EmH006/g/1bHQw83Z7j/who-gets-pd-removing-stereotypes-
a-fireside-chat-with-shafaq-hussain-ali-6a224U15mr3F/overview
**Tuesday, October 4th, 3 PM, PMD Alliance presents Partners from Medtronic
and Rune Labs as they share the New Era of Managing your Disease.
Click below for further information and to register:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/wearable-symptom-tracking-
brainsense-a-new-era-of-managing-your-disease-6a224U15mrXd/overview
** Tuesday, October 4th, 6:30-7:30 IINOVA presents Dr. Drew Falconer to speak on
gaining the best outcomes when hospitalized.
Click below to register:
Click here to register
Tuesday, October 4th, 8 PM, SKYPASS Foundation with
Dr. Shilpa Chitnis will have Dr. Caroline Tanner. A MOST
RESPECTED RESEARCHER ON PARKINSON'S SPEAKING
ON Parkinson's Progression Markers Initiative, epidemiology
(including toxic chemical exposure, head injury, life style
factors) emerging research from the various trials and studies
Dr. Tanner is involved in, as well as the effects of Covid-19 on
PD. Click below to register.
REGISTER NOW BY CLICKING HERE.
Wednesday, October 5th, 3 PM, PMD Alliance presents Why Exercise
is Essential in Early PD with PT Jenny Tuccitto.
For further information and to register click below:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/why-exercise-is-essential-in-early-pd-5a222E2w00W/overview
Thursday, October 6th, 11-12:15, Arden Courts presents
Dr. Tam Cummings to speak on Navigating the Caregiver
Journey : Part one.
For further information and to register click below:
https://promedica-org.zoom.us/webinar/register/WN_I2HhIMXoTMm3Zgiq1A-Hog
Thursday, October 6th 1 PM, JCC's Parkinson's Connection presents
Movement and Motivation Dance with Patty Palese via zoom or
in person.
Join Zoom Meeting
https://link.edgepilot.com/s/6cb37a77/Ij0hYYYAOES-whJpfvXqag?u=https://zoom.us/
j/95033800394?pwd=QU1tNVRwRThaSDBxSzlxamRYaVpDdz09
Meeting ID: 950 3380 0394 Passcode: Patty
Tuesday, October 6th, 3 PM, PMD Alliance Presents Anxiety and Behavioral
Disturbances with Greg Petone.
For further information and to register click below:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/anxiety-and-behavioral-disturbances-in-pd-5a222E2vzzE/overview
**Tuesday, October 6th, 3 PM, Boston Scientific presents Hear from a Neurosurgeon
About Surgical Options for Parkinson's hosted by Dr. Francisco Ponce..
To register call 833-327-1473.
**Thursday, October 6th,6 PM, Carl Wittig presents Optimizing Vision in PD with
speaker Jess Dankanich, Occupational Therapist.
Click below to register.
https://us06web.zoom.us/meeting/register/tZ0ocO6grj0uHd3sgCqCUxVPh5XzBcmNPqW1
If you have questions or need help registering: call 570-952-5156
Wednesday, October 7th, 3 PM, Lewy Who? Understanding the Relationship
between PD & Lewy Body Dementia.
For further information and to register click below:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/lewy-who-understanding-the-relationship-
between-pd-and-lewy-body-dementia-5a222E2vzzn/overview
Saturday, October 8th, 8:30-10:00 -
STAMP OUT PARKINSON'S WALK
at the Philadelphia Zoo
( 3400 West Gerard Avenue, Philly )
organized by Wendy Lewis and The
Parkinson Council --
click below for further information:
https://theparkinsoncouncil.org/events2/category/special-event/
Hope to see YOU there!
**Monday, October 10th, 7 PM, PMD Alliance presents Manejando
el Regreso de Los Sitomas de Parkinson con un Tratamiento Unico.
Click here for further information and to register.
https://events.blackthorn.io/en/2EmH006/g/ec9PeP9HTv/manejando-el-regreso-de-los-
sintomas-de-parkinson-con-un-tratamiento-unico-6a224U15mrD0/overview
** Wednesday, October 12th, 6-7 PM, Inova presents Inova presents
Hope for Parkinson's: A Conversation with Leading Inova Neurologists
on Cutting Edge Research & New Treatments for those Diagnosed
with Parkinson's. Click below to register.
Click here to register
**Wednesday, October 12th,4 pm, PMD Alliance presents Managing the Return
of Parkinson's Symptoms with a Unique Treatment. Learn more
about Inbrija, a helper for off times, and see a Rock Steady demo.
Click below for further information and to register.
https://events.blackthorn.io/2EmH006/g/zQbZMzTv3s/managing-the-return-of-parkinsons-
symptoms-with-a-unique-treatment-6a224U15mrCv/overview
Friday, October 14th, 3 PM, PMD Alliance presents Pursuing Productive
Partnerships in PD Relationships.
For further information and to register click below:
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/pursuing-productive-partnerships
-in-pd-relationships-5a222E2w00b/overview
Monday, October 17th, 3 PM, PMD Alliance presents Moving On With Rytary
Extended Release Capsules. Dr. Brillman and a Spark Ambassador wil
share insights. For further information and to register click below.
https://events.blackthorn.io/2EmH006/g/zQbZMzTv3s/moving-on-with-rytaryr-
carbidopalevodopa-extended-release-capsules-6a224U15mrBG/overview
Tuesday, October 18th, 3PM, PMD Alliance presents The Patient Journey from
the Care Partner Perspective. Dr. Falconer will explore the
movement disorders journey from the care partner's
perspective. For further information and to register, click below.
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/the-patient-
journey-from-the-care-partner-perspective-6a224U15mrBL/overview
Wednesday, October 19th, 1 PM, Parkinson's Foundation presents Parkinson's 101:
What You and Your Family Should Know.
Click below for further information and to register in advance.
https://secure3.convio.net/prkorg/site/Calendar?id=108315&view=RSVP&_
ga=2.17084409.1900975593.1664155491-1477487305.1663558319
**Wednesday, October 19th, 2 PM APDA presents the Ins and Outs of
Telemedicine for Parkinson's Disease.. Click below to register.
Register Today
** Wednesday, October 19th,3 PM, PMD Alliance presents Roadmap to Care:
Planning for your Love-One's Needs at Each Stage of the
Disease. For further information and to register click below.
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/roadmap-to-care-6a224U15mrCq/overview
** Wednesday, October 19th, 6 PM, Boston Scientific presents Dr. Michelle Dagosline
speaking on Living Well with Parkinson's Disease.
To register call 833-327 -1473.
** Thursday, October 20th, Penn's Care Partner Series presents Sarah Hughes, CRNP, RN
to speak on how to best prepare and advocate for your loved one at their
clinic visits. Call 215-829-3038 to RSVP.
Thursday, October 20th, 2 PM, Senior Helpers presents Dementia Care Expert,
Teepa Snow speaking on Changing Seasons, Changing Circadian
Patterns. Changes occur in changes in sleep patterns,
Sundowning.
Teepa will share ways to come with the changes. Click below to register.
. Register Here!
**Wednesday, October 26th,11:30 AM, Alzheimer's in partnership with Elder Initiate presents
Healthy Living for Your Brain and Body.
Click here to register:Register
Friday, October 28th, PMD Alliance Presents APP Pulse Check? Advanced Therapy: Who Does What?
For further information and to register click below:
https://events.blackthorn.io/en/2EmH006/g/75Jaz0xVBn/app-pulse-check-advanced-therapy
-who-does-what-5a222E2vzzd/overview
Saturday, October 29th**, 10:30- 12:30, Parkinson's Foundation presents
a Care Partner Summit both live in Tarrytown, NY or VIRTUALLY.
For further information and to register click below.
Register In-Person Register Virtual
Monday, October 31st, 3 PM, PMD Alliance presents Staying A Step Ahead -
Walking Issues in PD. with Heather Cianci, PT from
Penn speaking.
For further information and to register click below.
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/staying-a-step-ahead---walking-issues-in-
parkinsons-5a222E2w00g/overview
Friday, November 4th, Davis Phinney Foundation presents
THE VICTORY SUMMIT VIRTUAL EVENT: Exercise and Living Well
with Parkinson's. For further information and to register click below: Register for the Event
Monday, November 7th, 3 PM, PMD Alliance presents Dr. Indu Subramanian sharing
info on From Grief to Gratitude and Growing Awareness: A fireside
Chat with Kuhan ( a patient)
For further information and to register click below:
https://events.blackthorn.io/en/2EmH006/g/1bHQw83Z7j/from-grief-to-gratitude-and-growing-awareness-a-
fireside-chat-with-kuhan-6a224U15mr5x/overview
** Monday, November 14th, CURE PSP FALL FAMILY CONFERENCE.
Philadelphia Airport Marriott, Philadelphia. Program will
partner with Penn Medicine. Registration $ 15. person until
Nov1st when it will go up to $30/ person..
For further information and to register click below.
https://give.curepsp.org/event/curepsp-fall-family-conference/e423343
Thursday, November 17th, 12 PM, Tall Oaks and AARP presents Holiday Hoax.
Visit TallOaksAL.com/Scam to register
Friday, November 18th, 4 PM, PMD Alliance presents APP Plus Check!
How Do You Choose the Right Advanced Therapy?
For Further information and to register click below.
https://events.blackthorn.io/en/2EmH006/g/75Jaz0xVBn/app-pulse-check-how-do-you-choose
-the-right-advanced-therapy-5a222E2vzzi/overview
Wednesday, November 30th, 9PM, PMD Alliance presents Manejando el
Regreso de los Sintomas de Parkinson con un Tratamiento Unico.
For further information and to register click below:
https://events.blackthorn.io/en/2EmH006/g/ec9PeP9HTv/manejando-el-regreso-de-los-
sintomas-de-parkinson-con-un-tratamiento-unico-6a224U15mrEJ/overview
Tuesday, December 13th, 3 PM PMD Alliance presents Barriers to Access
in DBS with Dr. Andrew Falconer who will open a dialogue on
the challenges and barriers to accessing DBS.
For further information and to register click below.
https://events.blackthorn.io/en/2EmH006/g/cSZj452wMK/barriers-to-
access-in-dbs-6a224U15mrBQ/overview
Friday, December 16th, 4 PM, PMD Alliance presents AAP
Pulse Check! Navigating Prior
Authorizations and Obtaining Medications
https://events.blackthorn.io/en/2EmH006/g/75Jaz0xVBn/app-pulse-check-navigating-prior-authorizations-and-
obtaining-medications-5a222E2vzzx/overview
Wednesday, May 10th, 1 PM, Parkinson Foundation presents
Understanding Gene and Cell-Based TherapiesClick Here to Watch Webinar
SCHEDULED SUPPORT GROUP SESSIONS
VIA ZOOM...
Checking for support groups for other forms of
Parkinsonisms... Progressive Supraneuclear
Palsey(PSP), Multiple Systems Atrophy (MSA)
and Corticobasal Degeneration (CBD) ...
click below for further information:
https://www.psp.org/ineedsupport/regional-support/
**FYI... NEW GROUP BEGAN SATURDAY OCTOBER 1ST FOR YOUNG ADULT
CHILDREN AND GRANDCHILDREN OF PEOPLE WITH PSP, CBD AND MSA
MEETING VITUALLY. AGES OF PARTICIPANTS - TEENS THROUGH 20'S.
LEADERS WILL BE SANJAY GEEVARGHESE AND EMMA WODWASKI -
GRANDCHILDREN OF GRANDPARENTS WITH PARKINSONISMS.
CLICK BELOW TO REGISTER.
https://us02web.zoom.us/meeting/register/tZEqceuorTwjH9F2SJcCo7NT9spGM84T_6jn
CORLYNN HULLFISh, SOCIAL WORKER AT COOPER
Men’s Group - 4th Friday of the month at 2:30, in person at the
clock tower in Voorhees.
Woman’s Group - the second Monday of the month at 2:30 via zoom .
Care Partners Group on the second Friday at 1:00 via zoom.
Contact Corlynn at 856-968-8581 and she will send you the
sign in information.
Living Well at Home Series Part X
Sponsored by Parkinson’s Disease and Movement Disorders Program at Penn
a Parkinson Foundation Center of Excellence
October 3, 2022-December 2, 2022
A series of programs to keep the PD community connected.
Mondays 11:00am-12:00pm Support Group
Join Zoom Meeting
https://us06web.zoom.us/j/5874950878?pwd=dkpNbWdRVGk4K01RZH
